RESOURCES

One reason I wrote Until My Memory Fails Me, was that it was difficult to find information about early cognitive decline. I hope you will discover some helpful resources for your journey in this section.

Organizations and Websites
  • AARP is a nonprofit, nonpartisan organization that empowers people to choose how they live as they age.

    You can learn more by visiting: aarp.org

  • Each county has an Area Agency on Aging to offer local support, resources and education regarding a multitude of issues such as housing, caregiver support, volunteer and other activities. Many have a Dementia Specialist who can assist a person living with cognitive changes and their loved ones access specific programs and resources. If you put in a google search for the Agency on Aging for your state, you will find a website which can direct you to your local agency.

    Or you can go to the national organization that represents the Area Agencies on Aging - USAging: usaging.org/adrcs

  • The mission of the Alzheimer's Association is to lead the way to end Alzheimer's and all other dementia — by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support. Both the national and local chapters offer support and education online. Local chapters often offer support groups and education in person as well.

    You can learn more by visiting: alz.org

  • Azheimer’s Disease Research Center at University of Wisconsin, Madison is designated by the national Institute on Aging (NIH). Through funding from the National Institute on Aging and the National Institutes of Health, the Wisconsin ADRC supports researchers in their pursuit of answers that will lead to improved diagnosis and care for patients while, at the same time, focusing on the program’s long-term goal — finding a way to prevent and effectively treat Alzheimer’s disease. They are also a great source of education about Alzheimer’s disease, dementia and Mild Cognitive Impairment.

    You can learn more by visiting: adrc.wisc.edu

  • This website was developed in collaboration between the Dalai Lama and the psychologist Paul Ekman. Atlas of Emotions is a wonderful interactive site that breaks down the mechanism of emotions and physiological responses.

    You can learn more by visiting: atlasofemotions.org

  • Dr. Lucy Hone and Dr. Denise Quinlan apply their research and training in positive psychology to help people understand and cope with grief.

    You can learn more by visiting: copingwithloss.co

  • Dementia Matters is an educational podcast series about Alzheimer’s disease and other causes of dementia, offering helpful information and current trends in research, diagnosis, and treatments.

    You can learn more by visiting: adrc.wisc.edu/dementia-matters

  • For articles and information on breakthroughs regarding Alzheimer’s Disease, visit: oprah.com/health_wellness/breakthroughs-that-help-with-alzheimers/all

  • Share the Care is a nonprofit organization offering a guidebook and tools to provide support for caregivers using a model to organize supportive care groups.

    You can learn more by visiting: sharethecare.org

  • WAM at Cleveland Clinic is dedicated to closing the gap in knowledge about women’s brain health by funding gender-based Alzheimer’s research and to provide prevention tips and tools to empower people to take control of their own brain health. WAM was founded by Maria Shriver (mariashriver.com).

    You can learn more by visiting: thewomensalzheimersmovement.org

Books
  • The Complete Family Guide to Dementia: Everything You Need to Know to Help Your Parent and Yourself

    By Thomas F Harrison, et al.

    Coping with MIld Cognitive Impairment (MCI)

    By Mary Jordan

    My Two Elaines: Learning, Coping, and Surviving as an Alzheimer’s Caregiver

    By Marty J Schreiber

    Dancing with Elephants: Mindfulness Training for Those Living with Dementia, Chronic Illness or an Aging Brain

    By Jarem Sawatsky

    Living with Mild Cognitive Impairment: A Guide to Maximizing Brain Health and Reducing Risk of Dementia

    By Nicole D. Anderson, et al.

    Coping with MIld Cognitive Impairment (MCI)

    By Mary Jordan

    My Two Elaines: Learning, Coping, and Surviving as an Alzheimer’s Caregiver

    By Marty J Schreiber

    Somebody I Used to Know

    By Wendy Mitchell

  • Most are available in paperback, on kindle, and in audiobooks.

     

    Comfortable with Uncertainty: 108 Teachings on Cultivating Fearlessness and Compassion

    How We Live Is How We Die

    The Places That Scare You: A Guide to Fearlessness in Difficult Times

    Fail, Fail Again, Fail Better: Wise Advice for Leaning into the Unknown

    Living Beautifully with Uncertainty and Change

    Start Where You Are: A Guide to Compassionate Living

    The Wisdom of No Escape: And the Path of Loving-Kindness

    How To Meditate

    No Time to Lose: A Timely Guide to the Way of the Bodhisattva

    When Things Fall Apart: Heart Advice for Difficult Times

    Taking the Leap: Freeing Ourselves of Old Habits and Fears

     

  • The Art of Living: Peace and Freedom in the Here and Now

    By Thich Natt Hanh

     

    The Power of an Open Question: The Buddha’s Path to Freedom

    By Elizabeth Mattis Namgyel

     

    Wherever You Go, There You Are: Mindfulness Meditation in Everyday Life

    By Jon Kabat-Zinn PhD

  • Healing through the Dark Emotions: The Wisdom of Grief, Fear, and Despair

    By Miriam Greenspan

     

    Resilient Grieving: How to Find Your Way Through a Devastating Loss

    By Lucy Hone PhD., Karen Reivich PhD

     

    My Stroke of Insight: A Brain Scientist’s Personal Journey

    By Jill Bolte Taylor, PhD

Videos